LIVING WITH THE CONDITION
I have completely analyzed myself! My way of being, my tendency to keep everything for myself and my trend to keep my frustration in my stomach aren’t all ideal in the case of Crohn’s.
My little prince and I then met in intensive care. I was in complete denial about my ileostomy.
My body had probably given me warnings before I felt these symptoms. Fortunately, I finally ended up listening to them! And what about you? Are you doing this?
When I first started experiencing anxiety (somewhere along my IBD journey) I again waited a great deal of time before seeking help. I either thought I was just over reacting or worse case scenario, I was completely loosing my mind.
Whenever I thought about maybe not getting an erection, it was all over: There was nothing for me to do anymore. I spent around a year and a half being unable to flourish my sexual life. I’d always tell myself that my problem would solve itself on its own. I figured that not being able to have an erection when you’re 20 years-old is impossible. I was wrong every time I told myself that.
So on October 3st, 2015 I had a subtotal colectomy procedure, leaving me with a temporary ileostomy. For the past year I’ve lived with my stoma as I’ve allowed my body to recover. Not recover from the surgery but recover from a life with ulcerative colitis.
After learning about my 27th surgery, I felt like I was stuck between the choice I was making and the one my family made. My mind was elsewhere, and I felt lost and sad. I didn't know how to tell my family I was not undergoing surgery.
Learning that you have cancer is like being punched in the face. Your entire world crumbles overnight and you have to start over from scratch. Your health becomes your priority.
I went through multiple physical changes caused by my disease, medications and surgery. Hopefully, all of those changes are now behind me.
I never expected I could get something like Crohn's disease. [...] That's when I learned about the big cramps and stomach pains that hurt so much you can't move nor talk.